HDYO Team
18. februar 2022
HDYO har mer informasjon om HS tilgjengelig for unge, foreldre og profesjonelle på vår webside:
www.hdyo.org
Staff
Our dedicated staff is made of passionate individuals who are here to help in any way we can. Please feel free to reach out to us directly.
Jenna Heilman
jenna@hdyo.org
Executive Director
Matt Ellison
matt@hdyo.org
Project Coordinator and Founder
Impacted by HD
Raj Kumar Lohana
raj@hdyo.org
Program Coordinator
Jenna Shea
jen@hdyo.org
Project Coordinator - Mentorship
Impacted by HD
Board
Executive Committee
Hayley Hubberstey
hayley@hdyo.org
Chair
Trey Randall
trey@hdyo.org
Secretary
Jarrod (Jay) Strydom
jay@hdyo.org
Treasurer
Research Committee
Dr. Bonnie Hennig-Trestman
DrBonnie@hdyo.org
Co-Chair Research Committee
Dr. Kelly Atkins
kelly@hdyo.org
Co-Chair Research Committee
Dr. Lauren Byrne
lauren@hdyo.org
Chief Investigator - JOIN-HD Registry
Impacted by HD
Advocacy & Education Committee
Lauren Youngborg
lauren.youngborg@hdyo.org
Co-Chair, Education
Ashley Clarke
ashley@hdyo.org
Co-Chair, Ambassadors
Impacted by HD
Seth Rotberg
seth.rotberg@hdyo.org
Co-Chair, Advocacy
Impacted by HD
Marketing & Fundraising Committee
Matthew Shore
matthew.shore@hdyo.org
Co-Chair
Impacted by HD
Clare Braithwaite
clare@hdyo.org
Co-Chair
Impacted by HD
General Board Members
Jenny Harte
jenny@hdyo.org
Board Member
Advisors
Eric Miller
eric@hdyo.org
Donna Spencer
donna@hdyo.org
Impacted by HD
Committee Members
Research Committee
Misty Daniel
Certified Clinical Research Coordinator, Scripps Health
Dr. Beth Ann Griffin
Senior Statistician, RAND Center for Causal Inference
Impacted by HD
Mustafa Mehkary
PhD Student, University of Toronto
Impacted by HD
Marina Papoutsi
Biomarker scientist, IXICO plc, Honorary senior research fellow, UCL
Bhairavi Srinageshwar
Post-doctoral Research Associate, College of Medicine, Central Michigan University
Education Committee
Erika Brockhoff
Prenatal Genetic Counselor at Mount Sinai West (NY)
Impacted by HD
Jill Freeland
Certified Child Life Specialist, University of Iowa Stead Family Children’s Hospital
Bhairavi Srinageshwar
Post-doctoral Research Associate, College of Medicine, Central Michigan University
Brittany Stowers
Student Studying Neuroscience and Psychology
Impacted by HD
Dr. Emma Yhnell
HD Researcher, Cardiff University, Wales, UK
Jessi Way
Masters of Science, Licensed Professional Counselor
Impacted by HD
Marketing Committee
Emily Hadley
Retail Buyer, World of Sweets
Sreesha Sivakumar
MPH Candidate, Yale School of Public Health
Biographies
You can learn more about the HDYO Team on our biographies page.